This recent study not only sheds some light on how lymphedema develops, but also carries the potential to inform future therapies and treatments.
Launched in 2011 by Alexa Ercolano, The Lymphie Life features articles detailing patients’ personal experiences living with lymphedema as well as tips and tricks, research news, product reviews, and interviews with healthcare professionals and community advocates.
“When my doctor told me I had lymphedema, I said, ‘OK. How do I fix it?’ She laughed at me and she goes, ‘Honey, you gotta live with it.’ And I said, ‘Yeah, that doesn’t work in my wheelhouse. I’ll find a way.'”
Social media holds the potential to connect and empower people, but it can just as easily tear down and dehumanize them. For one Canadian woman on Facebook earlier this week, it did both.
Imagine you were just diagnosed with lymphedema, except you’re in a foreign country. In addition to your diagnosis and treatment, there are language barriers, cultural differences, and insurance coverage to navigate — all the while adjusting emotionally and psychologically to life with a chronic medical condition.
The focus of the lymphedema narrative is often on female patients, but lymphie men are out there!