Latest Posts
Those 5 Difficult Words: “May I have your seat?”
What’s worse: no one offering me a seat, or me not speaking up for myself while I’m in pain? How can I expect others to look out for me when I don’t look out for myself?
Things my grandmother taught me
My grandmother Phyllis was not a “bake banana bread and knit sweaters” kind of grandma.
Research Roundup: Students are designing the future of lymphedema management
A summary of lymphedema and lymphatic research news from April 2019.
Research Roundup: New insights into surgical treatments, lipedema, and tropical lymphedema
A summary of lymphedema and lymphatic research news from March 2019.
A conversation with Gaynor Leech and the question that started it all
“I often hear from those that live with lymphedema that nobody listens … Spread the word: Lymphedema exists. We exist.”
A conversation with the co-chairs of the LE&RN California Chapter
“This day means ‘we matter,’ ‘I am not alone in this fight,’ ‘my disease is real.’ It’s a day where we can come together and demand that the world hears us.”
A conversation with Emma Detlefsen, the girl in the purple cape
“Maybe at first people are like, ‘Who is this kid?’ But usually after I talk, they realize that I kinda know what I’m talking about.”
A conversation with Heather Ferguson, mother of the Lymphedema Treatment Act
“Lymphedema has become a defining feature of my life precisely because I didn’t want it to define my son’s life.”
Lymphedema Day 2019: Looking at the many faces of advocacy
In honor of Lymphedema Awareness Day, we’ll be spending the month of March getting to know some of the people behind global lymphedema advocacy efforts.
Research Roundup: Examining lymph node clues and fake health news
A summary of lymphedema and lymphatic research news from February 2019.
