Stay elevated.
For this year’s World Lymphedema Day, I spoke with Dr. Gousopoulos about the globalization of the lymphedema community, the importance of patient involvement, and his vision as chair of the Europe Chapter of LE&RN.
“When my doctor told me I had lymphedema, I said, ‘OK. How do I fix it?’ She laughed at me and she goes, ‘Honey, you gotta live with it.’ And I said, ‘Yeah, that doesn’t work in my wheelhouse. I’ll find a way.'”
Social media holds the potential to connect and empower people, but it can just as easily tear down and dehumanize them. For one Canadian woman on Facebook earlier this week, it did both.
Imagine you were just diagnosed with lymphedema, except you’re in a foreign country. In addition to your diagnosis and treatment, there are language barriers, cultural differences, and insurance coverage to navigate — all the while adjusting emotionally and psychologically to life with a chronic medical condition.
The focus of the lymphedema narrative is often on female patients, but lymphie men are out there!
Isa-Bella shares her story of positivity and hope in her own words.
Submitted by Kati C., November 2012. I guess my story starts the day I after I turned 17. I droveContinue Reading
Submitted by Kimber, August 2012. I’m 24 years old and have had primary lymphedema in my lower left leg sinceContinue Reading
Submitted by Barbara P., August 2012. At 61, I’m in that group of Baby Boomers who’ve had primary lymphedema for anContinue Reading
Submitted by Melanie, August 2012. Hello :) My name is Melanie and I am from Canada. 3 years ago weContinue Reading
