My Top 5 Takeaways from the 2019 National Lymphedema Network Conference
The 2019 NLN Conference was full of amazing information. Here are five of my biggest takeaways.
Category: Lymphie Stories
A conversation with Gaynor Leech and the question that started it all
“I often hear from those that live with lymphedema that nobody listens … Spread the word: Lymphedema exists. We exist.”
A conversation with the co-chairs of the LE&RN California Chapter
“This day means ‘we matter,’ ‘I am not alone in this fight,’ ‘my disease is real.’ It’s a day where we can come together and demand that the world hears us.”
A conversation with Emma Detlefsen, the girl in the purple cape
“Maybe at first people are like, ‘Who is this kid?’ But usually after I talk, they realize that I kinda know what I’m talking about.”
A conversation with Heather Ferguson, mother of the Lymphedema Treatment Act
“Lymphedema has become a defining feature of my life precisely because I didn’t want it to define my son’s life.”
Lymphedema Day 2019: Looking at the many faces of advocacy
In honor of Lymphedema Awareness Day, we’ll be spending the month of March getting to know some of the people behind global lymphedema advocacy efforts.
“Without drug trials, we can’t move forward”: One patient’s hope to participate in the ubenimex trials
Barbara desires to help fellow lymphedema patients by participating in the ULTRA study.
The Cellulitis Diaries: a day-by-day account of surviving infection while abroad
Few things are scarier than a bout of cellulitis – except, perhaps, getting cellulitis while in another country.
Elevating the voices of men with lymphedema: Adapting to a new reality
Talking to Andy, Nick, Ashley, and Charlie about their experiences adapting to the realities of life with lymphedema.
Elevating the voices of men with lymphedema: Finding trousers (and treatment) that fit
Talking to Josh, Michael, Angus, and Steve about the trial-and-error that comes along with living with lymphedema.