“Without drug trials, we can’t move forward”: One patient’s hope to participate in the ubenimex trials
Barbara desires to help fellow lymphedema patients by participating in the ULTRA study.
Category: Lymphie Stories
The Cellulitis Diaries: a day-by-day account of surviving infection while abroad
Few things are scarier than a bout of cellulitis – except, perhaps, getting cellulitis while in another country.
Elevating the voices of men with lymphedema: Adapting to a new reality
Talking to Andy, Nick, Ashley, and Charlie about their experiences adapting to the realities of life with lymphedema.
Elevating the voices of men with lymphedema: Finding trousers (and treatment) that fit
Talking to Josh, Michael, Angus, and Steve about the trial-and-error that comes along with living with lymphedema.
Elevating the voices of men with lymphedema: Barriers and bridges
Talking to Omar, Micke, Bill, and Mahmoud about their experiences accessing treatment and support as lymphie men.
Self-care suggestions: an illustrated response to reader mail
“Drawing” on my own experience in response to a reader’s questions about self-care.
“We live in a globalized world”: A conversation with Dr. Epameinondas Gousopoulos
For this year’s World Lymphedema Day, I spoke with Dr. Gousopoulos about the globalization of the lymphedema community, the importance of patient involvement, and his vision as chair of the Europe Chapter of LE&RN.
For Lymphies, By Lymphies: A Conversation with Nancy Vee of EZ Medical Wraps
“When my doctor told me I had lymphedema, I said, ‘OK. How do I fix it?’ She laughed at me and she goes, ‘Honey, you gotta live with it.’ And I said, ‘Yeah, that doesn’t work in my wheelhouse. I’ll find a way.'”
Shamed by Facebook: How One Woman’s “Undesirable” Photo Turned Outrage into Empowerment
Social media holds the potential to connect and empower people, but it can just as easily tear down and dehumanize them. For one Canadian woman on Facebook earlier this week, it did both.
Lost in Translation: An American’s Story of Lymphedema Diagnosis and Treatment in Japan
Imagine you were just diagnosed with lymphedema, except you’re in a foreign country. In addition to your diagnosis and treatment, there are language barriers, cultural differences, and insurance coverage to navigate — all the while adjusting emotionally and psychologically to life with a chronic medical condition.