Category: Lymphie Stories
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Shamed by Facebook: How One Woman’s “Undesirable” Photo Turned Outrage into Empowerment
Social media holds the potential to connect and empower people, but it can just as easily tear down and dehumanize them. For one Canadian woman on Facebook earlier this week, it did both.
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Lost in Translation: An American’s Story of Lymphedema Diagnosis and Treatment in Japan
Imagine you were just diagnosed with lymphedema, except you’re in a foreign country. In addition to your diagnosis and treatment, there are language barriers, cultural differences, and insurance coverage to navigate — all the while adjusting emotionally and psychologically to life with a chronic medical condition.
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Lymphie man uses humor and storytelling to share about life with lymphedema
The focus of the lymphedema narrative is often on female patients, but lymphie men are out there!
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“I always end up still feeling good about my body”: How one woman with Parkes Weber Syndrome stays positive
Isa-Bella shares her story of positivity and hope in her own words.
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Lymphie Stories: Kati C.
Submitted by Kati C., November 2012. I guess my story starts the day I after I turned 17. I drove home from an activity and noticed that my left foot was super swollen, and painful. My mom took me the next day to our regular doctor and he looked at my foot and legs and…
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Lymphie Stories: Kimber W.
Submitted by Kimber, August 2012. I’m 24 years old and have had primary lymphedema in my lower left leg since I was about 10 years old. I wear compression stockings, use a pump and have tried wrapping and massage techniques in the past — but the swelling never budges (except by getting gradually worse over…
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Lymphie Stories: Barbara P.
Submitted by Barbara P., August 2012. At 61, I’m in that group of Baby Boomers who’ve had primary lymphedema for an extraordinarily long time (at least half a century, in my case) and couldn’t get a proper diagnosis and treatment for decades. I don’t even know how long I’ve had it, but I have no memory of ever…
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Lymphie Stories: Melanie
Submitted by Melanie, August 2012. Hello :) My name is Melanie and I am from Canada. 3 years ago we discovered that I had primary lymphedema in both of my legs, specially the right one. It started around 13 years ago. I didn’t know what it was and I guess I didn’t want to know…
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Guest Post: Lucie’s Physiotherapy Experience
Lucie Crouch recently underwent physiotherapy for her lymphedema. After a positive experience, she decides to share her story. I’ve been living with lymphedema for around eight years now. I’ve pretty much been through it all: painful leg drainage, herbal remedies, hardcore and rather painful CDT (complete decongestive therapy)… I’ve tried a plethora of different massage…
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Lymphie Stories: Mamie F. and her Lift 4 Lymph Fundraiser
Mamie has combined her love of CrossFit and lymphedema advocacy in a fundraising event!