Category: Lymphie Stories
-
Elevating the voices of men with lymphedema: Barriers and bridges
Talking to Omar, Micke, Bill, and Mahmoud about their experiences accessing treatment and support as lymphie men.
-
Lymphedema self-care suggestions: an illustrated response to reader mail
“Drawing” on my own experience in response to a reader’s questions about self-care.
-
“We live in a globalized world”: A conversation with Dr. Epameinondas Gousopoulos
For this year’s World Lymphedema Day, I spoke with Dr. Gousopoulos about the globalization of the lymphedema community, the importance of patient involvement, and his vision as chair of the Europe Chapter of LE&RN.
-
For Lymphies, By Lymphies: A Conversation with Nancy Vee of EZ Medical Wraps
“When my doctor told me I had lymphedema, I said, ‘OK. How do I fix it?’ She laughed at me and she goes, ‘Honey, you gotta live with it.’ And I said, ‘Yeah, that doesn’t work in my wheelhouse. I’ll find a way.'”
-
Shamed by Facebook: How One Woman’s “Undesirable” Photo Turned Outrage into Empowerment
Social media holds the potential to connect and empower people, but it can just as easily tear down and dehumanize them. For one Canadian woman on Facebook earlier this week, it did both.
-
Lost in Translation: An American’s Story of Lymphedema Diagnosis and Treatment in Japan
Imagine you were just diagnosed with lymphedema, except you’re in a foreign country. In addition to your diagnosis and treatment, there are language barriers, cultural differences, and insurance coverage to navigate — all the while adjusting emotionally and psychologically to life with a chronic medical condition.
-
Lymphie man uses humor and storytelling to share about life with lymphedema
The focus of the lymphedema narrative is often on female patients, but lymphie men are out there!
-
“I always end up still feeling good about my body”: How one woman with Parkes Weber Syndrome stays positive
Isa-Bella shares her story of positivity and hope in her own words.