The Lymphie Life

Author: Alexa Ercolano

Quick Links for Lymphies

I’m looking for:

A lymphedema therapist and other local support.

Resources for lymphie kids and their families.

Lymphedema therapy training programs.

I need a list of:

Companies that make or sell lymphedema supplies.

Research opportunities and clinical studies.

Lymphedema blogs, podcasts, etc.

See Full List of Links

F.A.Q.s

What is lymphedema?

Lymphedema is swelling caused by a buildup of lymph fluid, usually in an arm or leg, when the lymphatic system can’t drain properly. It’s a chronic condition, but with the right care, it can be managed well.

What causes lymphedema?

It can be primary (something you’re born with, due to how your lymph vessels developed) or secondary (caused by something else, like surgery involving lymph node removal, radiation, infection, or trauma).

Is there a cure for lymphedema?

There’s currently no cure, but you can help ease symptoms through compression therapy, manual lymphatic drainage, exercise, and skin care. Some patients may also be candidates for surgical options.

How do I know if I have lymphedema, or if it’s something else?

The telltale sign is persistent swelling in a limb (or another area) that doesn’t go away with rest or elevation. You may have a feeling of heaviness, tightness, or “fullness” in the affected area, as well as hardening or thickening of the skin.

Lymphedema can sometimes develop slowly, even months or years after surgery or cancer treatment, so any new or unexplained swelling is worth mentioning to your doctor.