Lymphedema news

CASTING CALL: New Docu-Series on Rare Genetic Conditions Looking for Participants

Raw, a television production company based in London, is seeking participants for a new documentary series they are working on about people living with rare genetic conditions.

Calling all lymphies!

raw_logoRaw, a multi-award winning television production company based in London, recently reached out to me about a new documentary series they are working on for a major cable network in the United States about people living with rare genetic conditions.

They had been hearing a lot about lymphedema lately and wanted me to get the word out to the Lymphie Life community to see if any of you would be interested in participating! This would be an amazing opportunity to spread awareness about lymphedema to the public and get the word out about what it’s like to live day-to-day with this condition.

They are looking for children or adults who are willing to talk about how their condition affects them. Ideally, they would prefer someone who has never met another person with their condition in real life, as part of the show will involve meeting someone like you!

Interested? To find out more, get in touch with Raw via email today: someonelikeme@raw.co.uk

If you are under 18, you will need to seek permission from a parent or guardian, who will then need to email on your behalf.

From Raw: We will use the information you provide for the purposes of casting selection only, and this may include sharing your information with the Network. We will not sell or pass your information to any third parties. We may contact you in the future to inquire about your potential participation in other programs.

From The Lymphie Life: I am not associated or affiliated with Raw Television, other than helping to spread the word about casting for their new show! Please direct any inquiries or applications to the email listed above.

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7 comments on “CASTING CALL: New Docu-Series on Rare Genetic Conditions Looking for Participants

  1. Evonnia "Evy" Dominguez

    Hi Alexa! Will there be a follow-up on your blog and IG account on when this series will be aired. I look forward to watching this! Thanks!

    Your fellow Lymphie Pal,
    Evy!

    • Yes!! The assistant producer told me it is in the very early stages, but I will keep an eye out for when it’s set to air so we can all tune in! :)

  2. carolynmcclugage@gmail.com

    Definitely interested! I’m 45 and I have primary Lymphedema. I have quite a story

    Sent from my iPhone

    >

  3. I’m so happy to hear about this ! I live in a major city and there is still so much that the medical community is not aware of. I constantly hear what a rare case I am. I would love to share my story. Mine began at birth. My story is very interesting, and my disease is unpredictable. My docs, and therapists say that mine is a very unusual case. They constantly want to bring in their students to see me. I pray I can be a part of this.

  4. Oops I forgot, I have more then one type, basically primary in legs, and feet, then after an unrelated surgery, it spread to my left arm and up to my chest. I’m 40 years old and ready to share my story :) I did send an email !

  5. Pingback: Placeres culpables | Mujeres y Madres Magazine

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