Lymphie Stories

Lymphie Stories: Donna S.

Submitted by Donna S., August 2012.

I am 34 years old and 2 1/2 years ago my left leg started to swell.  I was and still am a keen fitness fanatic and was always self conscious about my weight even though I was a size 10.  At the time I was single.

I went to the doctors several times about it and I was told that it was just a sprain and was put on a course of directics.  It wasn’t until around 8 months later and several vists to my GP that I was referred for numerous tests.  I was finally diagnosed in January 2010.

The day before my final diagnosis I had met a lovely man and then finding out that I had Primary Lymphoedema I felt like my world had ended.  How would this man love me if he were to find out?  After getting to know him I decided a week later to tell him.  Well we are now living together and have a 10 month old gorgeous little boy called George.

I have my good days and bad days, days when I feel “why me?” and when my leg is at its worse I feel moody and tearful.  Chris always says never look on the negative but look at the positives and to be honest I feel almost glad this has happened to me.  I am not self centred anymore or obsessed about my weight…. Life is for the living, so long as I can walk I’m grateful.  My left leg is slightly bigger than the right BUT it’s my leg, part of who I am and I still love it.  I still have bad days but my family get me through …. Chris, my baby George and my lovely mum and dad and I love them all x

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6 comments on “Lymphie Stories: Donna S.

  1. Donna, thanks for sharing your story. What was it like being pregnant with Lymphedema? Did you have any complications? I considering starting a family soon and I’d like to be prepared as I can be. Thanks!

  2. Donna Stephenson

    Sorry Rosie I didn’t see this question.
    My lymphoedema wasn’t too bad when pregnant. My leg was more swollen but I continued to wear my compression stocking everyday. After my boy was born, I continued to exercise and do my massaging, my leg gradually went down. My advice would be to start a family, there’s no better feeling but just continue to look after yourself. Good luck x

  3. Donna Stephenson

    Let me know how you get on x

  4. This is encouraging . I am a female aged 32 , I have been living with lympedema since I was 16. I can relate to your emotions. I have had my bad days too, I just lock my door sometimes and cry. The fear for the future kicks in, the emotional pain has been enormous.

    I too would like to have a baby one day. I command you for falling in love because everyone deserves to be loved. I am so scared to fall in love. I once told a guy about my condition but he never called back.

    I am considered as a weirdo for not dating and having a child at 32 , but people don’t know my problem . I am especially sad at social events.

    You just encouraged that you successfully had a baby :-). I would like to have a baby one day.

  5. dgf

  6. Anna, never despair! I am now the proud mother of two boys. I’m managing to control my leg swelling. I hope you are okay x

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