A conversation with Emma Detlefsen, the girl in the purple cape
“Maybe at first people are like, ‘Who is this kid?’ But usually after I talk, they realize that I kinda know what I’m talking about.”
Tag: primary lymphedema
“We live in a globalized world”: A conversation with Dr. Epameinondas Gousopoulos
For this year’s World Lymphedema Day, I spoke with Dr. Gousopoulos about the globalization of the lymphedema community, the importance of patient involvement, and his vision as chair of the Europe Chapter of LE&RN.
A Primer on Primary Lymphedema
Knowing the genetic mechanisms behind primary lymphedema is important, not just for the development of new and improved treatments but also to provide valuable insight into the lymphatic system itself.
“With research, possibilities are limitless”: Rare Disease Day 2017
Life with a rare disease is one often fraught with a lack of answers — but it’s also one of immense hope.
Shamed by Facebook: How One Woman’s “Undesirable” Photo Turned Outrage into Empowerment
Social media holds the potential to connect and empower people, but it can just as easily tear down and dehumanize them. For one Canadian woman on Facebook earlier this week, it did both.
Lymphie Stories: Kati C.
Submitted by Kati C., November 2012. I guess my story starts the day I after I turned 17. I droveContinue Reading
My garments are in!
After three weeks of wrapping, my garments have come in: I’m now the proud owner of a brand-new Mediven stocking and a Solaris Tribute nighttime garment!
All Wrapped Up
I just began my four-week wrapping treatment — here’s what it’s all about!
Tell your story!
Submit your story to the Lymphie Life! Use the contact form here to share your personal story of living withContinue Reading
Yesterday’s Overdue Appointment
It’s been a while since I’ve gone to my lymphedema clinic — three years, to be exact!