Tag: primary lymphedema
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Research Roundup: Summer 2021 Edition
A summary of lymphedema and lymphatic research news from June through August 2021.
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A conversation with Emma Detlefsen, the girl in the purple cape
“Maybe at first people are like, ‘Who is this kid?’ But usually after I talk, they realize that I kinda know what I’m talking about.”
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“We live in a globalized world”: A conversation with Dr. Epameinondas Gousopoulos
For this year’s World Lymphedema Day, I spoke with Dr. Gousopoulos about the globalization of the lymphedema community, the importance of patient involvement, and his vision as chair of the Europe Chapter of LE&RN.
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A Primer on Primary Lymphedema
Knowing the genetic mechanisms behind primary lymphedema is important, not just for the development of new and improved treatments but also to provide valuable insight into the lymphatic system itself.
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“With research, possibilities are limitless”: Rare Disease Day 2017
Life with a rare disease is one often fraught with a lack of answers — but it’s also one of immense hope.
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Shamed by Facebook: How One Woman’s “Undesirable” Photo Turned Outrage into Empowerment
Social media holds the potential to connect and empower people, but it can just as easily tear down and dehumanize them. For one Canadian woman on Facebook earlier this week, it did both.
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My garments are in!
After three weeks of wrapping, my garments have come in: I’m now the proud owner of a brand-new Mediven stocking and a Solaris Tribute nighttime garment!
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All Wrapped Up
I just began my four-week wrapping treatment — here’s what it’s all about!
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Tell your story!
Submit your story to the Lymphie Life! Use the contact form here to share your personal story of living with lymphedema, and, with your permission, it’ll be posted on the website. Reading each others’ stories are a nice reminder that we aren’t alone, so reach out and share yours today!