A conversation with Emma Detlefsen, the girl in the purple cape
“Maybe at first people are like, ‘Who is this kid?’ But usually after I talk, they realize that I kinda know what I’m talking about.”
Tag: lymphedema treatment act
A conversation with Heather Ferguson, mother of the Lymphedema Treatment Act
“Lymphedema has become a defining feature of my life precisely because I didn’t want it to define my son’s life.”
Research Roundup: Axillary Nodes, Advocacy, and the Lymphedema Lobby Days
A summary of lymphedema and lymphatic research news from March 18 – 24, 2017.
Updates on the Lymphedema Treatment Act
Through the tireless work of the Lymphedema Advocacy Group, patient advocates, and politicians like Congressman Dave Reichert championing the bill, there has been a groundswell of support and action.
Recap: Lymphedema Lobby Days 2016
I joined over seventy patient advocates from across the country for an amazing, inspiring, nerve-wracking, exhilarating, and empowering couple of days in Washington, DC.
Checking in and catching up
For those of you burning the midnight oil so you can fully follow your passions someday — we can do this! (The key is lots of twenty-minute naps.)
Lymphedema Awareness Day
Today is a day for us to join together and use our voices not only to spread awareness about lymphedema, but to celebrate our amazing community.