Tag: advocacy
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A conversation with Gaynor Leech and the question that started it all
“I often hear from those that live with lymphedema that nobody listens … Spread the word: Lymphedema exists. We exist.”
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A conversation with the co-chairs of the LE&RN California Chapter
“This day means ‘we matter,’ ‘I am not alone in this fight,’ ‘my disease is real.’ It’s a day where we can come together and demand that the world hears us.”
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A conversation with Emma Detlefsen, the girl in the purple cape
“Maybe at first people are like, ‘Who is this kid?’ But usually after I talk, they realize that I kinda know what I’m talking about.”
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A conversation with Heather Ferguson, mother of the Lymphedema Treatment Act
“Lymphedema has become a defining feature of my life precisely because I didn’t want it to define my son’s life.”
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Lymphedema Day 2019: Looking at the many faces of advocacy
In honor of Lymphedema Awareness Day, we’ll be spending the month of March getting to know some of the people behind global lymphedema advocacy efforts.
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Must Read: Article on the “Lymphedemic”
LE&RN executive director William Repicci’s recent article for National Lymphedema Awareness Day is worth reading for patients and healthcare providers alike.