A summary of lymphedema and lymphatic research news from June 5 – 11, 2017.
Launched in 2011 by Alexa Ercolano, The Lymphie Life features articles detailing patients’ personal experiences living with lymphedema as well as tips and tricks, research news, product reviews, and interviews with healthcare professionals and community advocates.
We’re not only explaining lymphedema and the lymphatic system, but doing so within the context of our own personal experiences as lymphies.
For this year’s World Lymphedema Day, I spoke with Dr. Gousopoulos about the globalization of the lymphedema community, the importance of patient involvement, and his vision as chair of the Europe Chapter of LE&RN.
“When my doctor told me I had lymphedema, I said, ‘OK. How do I fix it?’ She laughed at me and she goes, ‘Honey, you gotta live with it.’ And I said, ‘Yeah, that doesn’t work in my wheelhouse. I’ll find a way.'”
Social media holds the potential to connect and empower people, but it can just as easily tear down and dehumanize them. For one Canadian woman on Facebook earlier this week, it did both.
Imagine you were just diagnosed with lymphedema, except you’re in a foreign country. In addition to your diagnosis and treatment, there are language barriers, cultural differences, and insurance coverage to navigate — all the while adjusting emotionally and psychologically to life with a chronic medical condition.